The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. They offer programming and support to keep patients self-sufficient and their homes safe, and provide educational programs to heighten public awareness and promote understanding about the disease.
Renal Support Network (RSN) is a nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by chronic kidney disease. RSN strives to motivate and assist patients in developing their personal coping skills, special talents, and employability by educating and empowering them (and their family members) to take control of the course and management of their disease. RSN values people with kidney disease and helps them become self-sufficient through education, advocacy, and hope for a better tomorrow. http://www.rsnhope.org/
GiveForward (http://www.giveforward.com/) empowers friends and family to provide emotional and financial support to loved ones while they navigate a medical crisis. A GiveForward page makes fundraising for out-of-pocket expenses like co-pays, travel and lodging, and alternative treatments easy. Create a page today to spread hope and support a loved one.
The transition from pediatric health care to adult-oriented health care can be very complicated for people with disabilities and chronic health conditions. The Jacksonville Health and Transition Services (JaxHATS) clinic helps make this transition easier. Jax HATS produced a very good overview showing how to use MyMedSchedule.
MedIDs.com offers a free tool to create and print a Free Emergency Medical ID Wallet Card (ICE). MedIDs also offers Medical Emerg Alert® Jewelry—medical identification jewelry that is affordable and attractive. http://MedIDs.com/
The Healthy Transitions website teaches skills and provides tools for youth with developmental disabilities ages 14-25 years transitioning from pediatric to adult healthcare, and their family caregivers, service coordinators, and health care providers. It features video vignettes that demonstrate health transition skills and interactive tools that foster self determination and collaboration.
Transplant Buddies Support Group—an online community of sharing, caring, friendly individuals from all over the world, that have been or will be touched by an organ transplant. http://transplantbuddies.org/
Deaconess Parish Nurse Ministries and the International Parish Nurse Resource Center foster physical, emotional, spiritual, and social harmony leading to healthy and healing relationships with God, family, faith communities, culture and creation. http://ipnrc.org/
Donated Organs are a precious gift. UNOS helps make sure that these organs are placed in the most equitable way possible. http://www.unos.org/
pure bliss is a nutritional consulting company that works with clients that are looking to improve their overall well-being through proper nutrition. Be sure to check out the blog, which is always filled with healthy, delicious recipes and useful tips.
Offers an overview of MyMedSchedule. Download and print a copy to share with a friend or family member.
ITNS is committed to the promotion of excellence in clinical transplant nursing through the provision of educational and professional growth opportunities, interdisciplinary networking, collaborative activities, and nursing research.
NATCO, The Organization for Transplant Professionals is committed to the advancement of organ and tissue donation and transplantation.
AAHFN is a specialty organization dedicated to advancing nursing education, clinical practice and research to improve heart failure patient outcomes.
- Kudos for a great app and site
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- “I would love to shake the person’s hand that came up with this”
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- MyMedSchedule’s Donna Brooten interviewed on the Renal Support Network’s KidneyTalk Podcast
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